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Resilience PDF Print E-mail
Written by Gayle Nobel   
Friday, 03 February 2012 17:04

It's been a nice week and a half with Kyle back to himself after the previous, slightly shorter, but rougher cycle. I believe we have all been breathing  a little easier. I know I certainly have.

Tuning in to my body, I notice there is a relaxing in the pit of my gut which happens pretty quickly after I am sure Kyle has fully recovered. This letting go is a familiar feeling after so many months of Kyle's on again, off again stuff. I am always just a little surprised at my sense of relief because I don't fully realize how tense I become despite my efforts to roll with the flow.

With each cycle I tell myself that I will not let this one get to me. My happiness will not depend on whether or not Kyle is in rough waters. I will just do what I need to do and be strong. I don't want my emotions to be tossed here and there like a roller coaster. I will be happy anyway because I, and only I, am in control here. This never really works.

Though I do not fall apart during Kyle's cycles, and I am less emotional than I was a year and a half ago, I still feel it when I watch Kyle slip into a cycle where we are both holding on so tightly but helpless to do anything about it. My heart hurts as I watch him suffer.  The process of finding a medical solution is painfully slow. Hello, patience muscles.

After a day or so, my determination gives way to what is and a cloud moves over my psyche and soul. It's easier now because I have a lot of help so full time care does not fall 100% in my lap. In fact, I can go on with my life more than ever before these days but the angst is still there. It takes residence in my being, in the house, in the people that love Kyle and it stays until he is out of the woods.

After this most recent cycle ended, I was a little disappointed that once again, I succumbed and was not able to stay more balanced. I got too unhappy for my liking. Darn.

As usual, there is an aha moment buried here. It is not about whether or not I succumb to unhappiness or get out of balance in the face of intense challenges. It is really about resilience, the ability to bounce back and then move forward. I love the word resilience as it slides off the tongue. Perhaps the ability to be resilient is related to allowing myself to be where I am without judgment. This gives me the strength to dust myself off and move on when I am ready.... the strength to be fully resilient.

A close friend of mine is going through treatment for breast cancer and chose resilience as one of her words this year. I dedicate this post to my friend CB. I have a feeling she will be showing me what resilience is really all about. In fact, she already has.

Happiness is indeed a choice but more than that, it is a journey. Resilience is the gemstone which helps pave the road.

Last Updated on Friday, 03 February 2012 17:34
 
Thousands of Things PDF Print E-mail
Written by Gayle Nobel   
Thursday, 26 January 2012 23:26

"Thousands of things  go right for you everyday. Pay attention. The more you focus on them, the more they mutliply."

~~Rob Brezsny 

So far today, they are..........

Last Updated on Thursday, 26 January 2012 23:36
 
Friendship is Oxygen-Rich PDF Print E-mail
Written by Gayle Nobel   
Wednesday, 25 January 2012 23:26

Here's another "oxygen-rich tool" to add to the toolbox. This came to me in an email recently. I am not at all surprised.

"At an evening class at Stanford, the last lecture was on the mind-body connection - the relationship between stress and disease. The speaker (head ofpsychiatry at Stanford) said, among other things, that one of the best things that a man could do for his health is to be married to a woman, whereas for a woman, one of the best things she could do for her health was to nurture her relationships with her girlfriends. At first everyone laughed, but he was serious.Women connect with each other differently and provide support systems that help each other to deal with stress and difficult life experiences. Physically this quality "girlfriend time" helps us to create more serotonin - a neurotransmitter that helps combat depression and can create a general feeling of well being. Women share feelings, whereas men often form relationships around activities. They rarely sit down with a buddy and talk about how they feel about certain things or how their personal lives are going.

Jobs? Yes. Sports? Yes. Cars? Yes. Fishing, hunting, golf? Yes. But their feelings? Rarely. Women do it all of the time. We share from our souls with our sisters/mothers/friends,and evidently that is very good for our health. He said that spending time with a friend is just as important to our general health as jogging or working outat a gym.There's a tendency to think that when we are "exercising" we are doing something good for our bodies, but when we are hanging out with friends, we are wasting our time and should be more productively engaged—not true. In fact, he said that failure to create and maintain quality personal relationships with other humans is as dangerous to our physical health as smoking! So every time you hang out to schmooze with a gal pal, just pat yourself on the back and congratulate yourself for doing something good for your health! We are indeed very, very lucky. Sooooo... let's toast to our friendship with ourgirlfriends. Evidently it's very good for our health."

 
Happy, Sad, Inspired, Guilty PDF Print E-mail
Written by Gayle Nobel   
Tuesday, 24 January 2012 21:11

WATCH THIS VIDEO!

I hope you will take time to watch this extraordinary story of Carly Fleischmann, a 14-year-old girl who has autism and is unable to speak, but has found a way to communicate with the world.

"I am autistic, but that's not who I am. Take time to know me before you judge me. "

~~Carly Fleischmann

Happy, Sad, Inspired, Guilty all at the same time.......

Happy- I am always happy to see news reports like this which help bring autism awareness to yet another level. We do underestimate people with autism particularly those who appear to be on the lower end of the spectrum because of the added obstacles they face and therefore, present. It is easy to do this because what we see on the outside does not match up to what's may be on the inside. In many ways, there is a devaluing or undervaluing of people based on their functioning level. Hopefully stories like this help to shift this mentality.

Sad- The sad part comes in when I think about how frustrating it might be to be my son Kyle. Many wants and needs unmet and locked into a body which acts on its own volition and is unable to settle enough to learn to communicate in a more sophisticated way.

Inspired- This story is so inspiring because it shows us that our kids and adults who function on the "lower" end of the autism spectrum have a lot more locked inside than what appears on the outside. I have always believed this though admittedly  have not acted upon that belief as much as maybe I could. The day to day care can be overpowering and overwhelming, making it easy to forget  to talk to and connect with the guy inside vs the guy who is not in complete control on the outside. It is also inspiring to see what the perserverance and support  of a family can do. Watching this report makes it look easier than it is for the family. The work, dedication, commitment and output are huge. They were rewarded with an equally huge result. Often the rewards are smaller and more subtle.

Guilty- I wonder if there are things I have missed in helping Kyle bust out of the trappings of his body. Have I done enough? This question seems to be one that comes to haunt parents of kids with special needs even after their children are adults. Or am I the only one? Ha! Guilty because in many ways, I have run out of steam on this path and am currently coasting.  I still find myself slipping back into the pattern talking in front of Kyle as if he does not understand.

Inspired- All the dedication I put into seeing that Kyle has a quality life to the best of my ability such as providing activites which I know he enjoys may be having an effect at an even deeper level than imagined. And for all those who wonder if driving him around to activities and dedication to therapy and an extreme concern for what he does during the day makes a difference, here is more evidence that it does. Admittedly, sometimes I question it too because I don't get a lot of feedback  from Kyle. Giving without needing to get back directly is part of interacting with a person with autism.

Throughout Kyle's 28 year life, there have been many news reports of breakthroughs. Friends and family think of me when they see them. It seems that often the treatment reported doesn't seem to apply to Kyle and we are left happy for the child and family featured, but with a little layer of sadness for us. Wouldn't it be nice if this could be Kyle? I am not asking for a fix or cure as I have come to accept Kyle "as is". But if his life could be made richer or more satisfying or a little easier for him by being able to reach out and communicate, it sure would be nice. And wouldn't it be nice if people could see him a little differently as well?

Years of our family's hard work have yielded a different result. I'm happy for Carly and her family, but admittedly a little jealous too. At the same time, I am inspired to keep creating little shifts in my own attitude and actions to help Kyle be the best he can be in his life.

Would love to hear your thoughts after you have seen this video.

Last Updated on Tuesday, 24 January 2012 23:36
 
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